Winter 2021

Table Of Contents
Study Shows Lyme Can Cause Severe Mental Health Problems

Risk of depression, bipolar disorder, and suicide are higher in infected patients.

By Carla Cantor

Patient-Partnered Research Puts Patients in Charge

When patients contribute their data, they should know it will not be used to harm them.

By Lorraine Johnson, JD, MBA

Tick Infection Rates as High as 31% in Some Coastal Areas of California

Not only are there hot spots for tick density, but these ticks may carry more than one type of Borrelia, including some we can’t test for.

By Lonnie Marcum

Texas Federal Judge Dismisses Lyme Patient Lawsuit

Torrey et al. accused the IDSA, its guidelines authors and 8 insurance companies of colluding to deny patients appropriate medical treatment.

By Dorothy Kupcha Leland

Federal Tick-Borne Disease Working Group Gears Up to Produce Final Report to Congress by 2022

Efforts to focus on tick-borne diseases, examining research priorities, and identifying and addressing unmet needs.

By Dorothy Kupcha Leland

My Specialist said, “If You Had Lyme, You’d Be Better by Now”

A flu-like illness, positive test in an endemic area, expanding symptoms in spite of treatment—if it wasn’t Lyme, what was it?

By Daniel A. Kinderlehrer, MD

“Lyme Complex” Triggers Pandemonium in Immune System

Doctor describes multisystemic approach to control inflammation in new book.

By Dorothy Kupcha Leland

Author states no simple “cookbook answers” for Lyme treatment

Chronic infection is often a complex of tick-borne infections with complications that take years to diagnose properly.

By Daniel A. Kinderlehrer, MD

CDC Serves Up Same Old Wrongheaded Lyme Advice

Ignoring patient feedback will likely lead to more cases of chronic Lyme down the road as early cases are missed.

By Dorothy Kupcha Leland

Congress Considers Increasing Funding for Lyme Research and Education

Bills would bump up CDC budget, expand services to children, and create a new stamp.

By Dorothy Kupcha Leland

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