Tick-Borne Disease Working Group Special Issue SECTION

One-Dose Doxy

Tick-Borne Disease Working Group Special Issue

One-Dose Doxy

Dorothy Leland submitted the following comments to the Tick-Borne Disease Working Group in advance of the June 21, 2018, meeting.

By Phyllis Mervine

The Lyme Disease Stories We Share

Tick-Borne Disease Working Group Special Issue

The Lyme Disease Stories We Share

Among the most dramatic parts of the Tick-Borne Disease Working Group meeting were the public comments, including patient's Lyme disease stories.

By Dorothy Kupcha Leland

Two Standards of Care for the Diagnosis and Treatment of Lyme Disease

Tick-Borne Disease Working Group Special Issue

Two Standards of Care for the Diagnosis and Treatment of Lyme Disease

LymeDisease.org’s Lorraine Johnson gave the following verbal comments about the two standards of care during the Tick-Borne Disease Working Group’s June 21 meeting.

By Lorraine Johnson, JD, MBA

Alpha-Gal “Red Meat” Allergy: A Serious Condition Caused by a Tick Bite

Tick-Borne Disease Working Group Special Issue

Alpha-Gal “Red Meat” Allergy: A Serious Condition Caused by a Tick Bite

Alpha-gal "red meat" allergy develops after a person has been bitten by a lone star tick and becomes allergic to meat.

By Dorothy Kupcha Leland

Overview of the Tick-Borne Disease Working Group: What Has Been Accomplished so Far?

Tick-Borne Disease Working Group Special Issue

Overview of the Tick-Borne Disease Working Group: What Has Been Accomplished so Far?

TBDWG subcommittees have been working nearly around the clock to ensure high-integrity reports will be ready for submission to Congress later this year and will include the most comprehensive viewpoints possible.

By Lorraine Johnson, JD, MBA

A Timeline of Comings and Goings Related to the HHS Tick-Borne Disease Working Group

Tick-Borne Disease Working Group Special Issue

A Timeline of Comings and Goings Related to the HHS Tick-Borne Disease Working Group

Over a period of six months, there were a number of personnel changes.

By Dorothy Kupcha Leland

MyLymeData: A Patient-Centered Presentation to the Tick-Borne Disease Working Group

Tick-Borne Disease Working Group Special Issue

MyLymeData: A Patient-Centered Presentation to the Tick-Borne Disease Working Group

Lorraine Johnson, CEO of LymeDisease.org, shares data from the MyLymeData research project as well as her own personal experiences with Lyme disease.

By Lorraine Johnson, JD, MBA

Tick-Borne Diseases: A Big Problem in California

Tick-Borne Disease Working Group Special Issue

Tick-Borne Diseases: A Big Problem in California

LymeDisease.org founder, Phyllis Mervine shares her story of growing up in Lyme-endemic areas, and then contracting Lyme disease in Mendocino County, California.

By Phyllis Mervine

Lyme Disease Costs May Exceed $75 Billion per Year

Tick-Borne Disease Working Group Special Issue

Lyme Disease Costs May Exceed $75 Billion per Year

The CDC’s recent increase in estimated Lyme disease cases per year means we also need to update how we view real-world economic costs for Lyme patients.

By Lorraine Johnson, JD, MBA

The Undercounting of Lyme Disease

Tick-Borne Disease Working Group Special Issue

The Undercounting of Lyme Disease

We need accurate data about ticks, the infections they carry, and the number of tick-borne disease cases in all parts of the country.

By Phyllis Mervine

Why We Care About the Safety and Efficacy of Lyme Disease Vaccines

Tick-Borne Disease Working Group Special Issue

Why We Care About the Safety and Efficacy of Lyme Disease Vaccines

You don’t have to be an “anti-vaxxer” in order to raise questions about Lyme disease vaccines.

By Phyllis Mervine

How the LYMErix Lyme Disease Vaccine was Pulled from the Market

Tick-Borne Disease Working Group Special Issue

How the LYMErix Lyme Disease Vaccine was Pulled from the Market

Patricia Smith, president of LDA, identifies lessons we can learn from the LYMErix Lyme disease vaccine story and pitfalls we can hopefully avoid in the future.

By Pat Smith

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