T he Congressionally Directed Medical Research Programs (CDMRP) has awarded a grant of over $700,000 for a groundbreaking study of neurological Lyme disease using data collected by the MyLymeData patient registry.
Experts from UCLA, The College of New Jersey, and LymeDisease.org are teaming up on this project, called “Machine Learning Approach Using Patient Registry Data to Reveal Neurological Manifestations of Persistent Lyme Disease.”
Their goal? To better understand the links between patient characteristics and neurological Lyme symptoms.
“We’re very excited about participating in this highly innovative study—which is the first government-funded grant to support the MyLymeData patient registry,” said Lorraine Johnson, the CEO of LymeDisease.org and the principal investigator of MyLymeData. “It affirms the critical role of patient-centered research and validates the power of patient-reported outcomes and big data to drive meaningful advances in Lyme disease science.”
The study will focus on answering several questions such as:
- How should we define persistent neurologic Lyme disease?
- What diagnostic factors—for example, rash, lab results, misdiagnoses, diagnostic delays, and co-infections—are associated with persistent neurologic Lyme disease?
- How severe are symptoms of persistent neurologic Lyme disease and how much do they affect daily life?
- How do patients with persistent neurologic Lyme disease react to different treatments?…….Join or login below to continue reading.
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