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2015 Volume 27 Number 2

3

Growing number of chronic Lyme patients — still no

government action plan?

Delayed diagnosis of Lyme disease has devastating effect

on patients.

The LYME POLICY WONK blog is written by Lorraine

Johnson, JD, MBA, chief executive officer of LDo. Contact

her at

lbjohnson@lymedisease.org . On

Twitter, follow her

lbjohnson@lymedisease.org

Don’t miss the special online feature from our recent patient survey

#Real Lives. Real Stories.

Managing Lyme patients? How about treating them?

(Dr. Daniel Cameron)

Watch NY State Senator Serino’s Lyme forum (video)

An unusual presentation of Lyme disease in Georgia.

Cannabis for Lyme disease and related conditions

(book review)

When Lyme disease affects the heart (book review)

The TOUCHED BY LYME blog is written by

Dorothy Leland, LDo vice president.

Contact her at

dleland@lymedisease.org .

On Twitter, follow her

dleland@lymedisease.org

Thanks to all of you who participated in our March 2015 patient survey! It drew over 6,000 responses. The results were incorporated

into LDo’s formal submission to the Infectious Diseases Society of America (IDSA) as it prepares to revise its Lyme disease guidelines.

To read more of the results of our 2015 patient survey, go to

http://bit.ly/1CUuDOh

On the homepage, click on

News & Blogs

for News,

Lyme Policy Wonk, Touched by Lyme, and Focus.

Here are highlights of our recent coverage on

lymedisease.org

NEWS

LYME POLICY WONK

TOUCHED BY LYME

FOCUS

House passes 21st Century Cures Act with provisions

for Lyme disease.

Hidden Epidemic of Lyme is public health fiasco

(Business Insider).

Tiny tick, big controversy

(30 minute special from WMDT-TV).

Dr. Richard Horowitz, author of

Why Can’t I Get Better?

featured on NBC “Today” show.

Is CDC compromised by conflicts of interest?

British medical journal says the agency protects

“the private good.”

What really works to prevent tick bites?

Consumer Reports says certain repellents are more

effective than DEET.

How Lyme disease subverts the immune system

(UC Davis).

We also spread our message via social media:

youTube: find us at

youtube.com/user/TheLymeTimes

Twitter: follow us

@Lymenews

Facebook: “like” our page,

LymeDisease.org

Sign up to be notified by email when new blogs are posted

www.bit.ly/1MrLCud

Visit our homepage if you would like to receive free email newsletters.

LymeDisease.org

ONLINE

Stay current with LDo newS anD anaLySiS

Our recently redesigned LDo website catches changing information as it happens.

Visit us online at

lymedisease.org