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2015 Volume 27 Number 2
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Volume 27
Number 2
2015
LDo MyLymeData
Add your Lyme data to MyLymeData
IDSA GUIDELINES
10 | Flawed process persists despite antitrust investigationBy Lorraine Johnson
12 | New process threatens the integrity of planned revisionsBy Lorraine Johnson
PATIENT CARE
16 | National data projects hold promise for patientsBy Pamela Cocks
26 | Johns Hopkins researchers document high utilization and cost of illnessBy Phyllis Mervine
PATIENT VOICES
20 | Please Join MeBy JoAnn Vidal
34 | A Life on PauseBy Jenny Buttaccio
35 | When the Fog Rolls InBy Judy Starling
SPONSORS
9 | Tick Twister 21 | QmedRX 27 | Researched Nutritionals 25 | TCS Tick BoxesNEWS & EVENTS
ADVOCATES IN ACTION
7 | Patient events across the country highlight compromised careBy Sandi Bohle
CONFERENCES
33 | Save the Dates ILADS and LDA 2015 meetingsLDo ONLINE
3 | Refreshed website offers even more news and analysisMEDIA MATTERS
4 | Celebrity stories inform millionsBy Dorothy Kupcha Leland
6 | UOS:2 film sequel features LDo voices documenting the expanding epidemicBy Dorothy Kupcha Leland
DEPARTMENTS
EDITORIAL
2 | Big Data Is a Big DealBy Phyllis Mervine
DIAGNOSTIC TESTING
28 | Proposed federal policy deters development of better lab testsBy Lorraine Johnson
30 | FDA threat to monitor independent labs undercuts improved tests 31 | Proposed FDA regulations undermine good patient careBy Christine Green, MD
17 | COVER STORY: MyLymeData LDo’s new patient-powered research tool promises better treatment for LymeBy Lorraine Johnson
22 | COST OF ILLNESS LDo surveys provide patients a voice in policy debateBy Phyllis Mervine
29 | DIAGNOSTIC TESTING Synthetic antigen may improve the sensitivity of Western blotsBy Jyotsma Shah
William Shatner/Instagram 2015
FEATURES
Actor William Shatner (Captain Kirk of STAR TREK)
participating in the Lyme Disease Challenge.
He was one of the first celebrities to join the cause.