The Lyme Times Volume 25, Number 2

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FRONT & BACK COVERS:
Graphics were adapted from designs and animation
produced specifically for LDo’s MyLymeData project.
Visit to view the full video explaining
the project and how you may participate.
REDESIGNED LDo WEBSITE UP & RUNNING
(LDo) has improved its website. An
exciting new feature allows members the option of reading
The Lyme Times online. You will still reach us in the usual
way — by going to , but it has a revised
“responsive” design. What does this mean to you?
You can now read everything easily on a variety of devices
— desktop computers, laptops, tablets and smartphones,
for example.There is alsoupdated educational information
on many topics of interest to the Lyme community.
Check it out!
IDSA PROTEST IN SAN DIEGO
When the IDSA meets in San Diego this October, three
Lyme advocacy groups will be there as well. LymeDisease.
org, The Mayday Project, and the San Diego Lyme Disease
Support Group are cosponsoring a protest and candlelight
vigil outside the Convention Center on Oct. 910.
Can you join us? Visit for details.
CONFERENCES 2015 — Save the dates!
October 16-18: ILADS annual meeting in Ft. Lauderdale,
Florida.
November 14 & 15: Lyme Disease Association annual
conference in Warwick, Rhode Island.
For more information turn to TLT, page 35
SEND US YOUR PHOTOS
Would you like to provide a photo for The Lyme
Times or our LDo website? It’s as easy as 1, 2, 3. Point,
shoot, and attach it to an email noting “who, what,
where, and when.” Photos need to be high resolution.
Give it a try! Contact Sandi Bohle for further details:
LDo advocates nationally for accessible, quality healthcare
for patients with Lyme and associated tick-borne diseases.
We are committed to shaping healthcare policy through
advocacy, legal and ethical analysis, education, physician
training and medical research.
LDo provides a patient-powered research tool —
MyLymeData — to enable patients to influence the national
research agenda. We conduct national patient surveys
published in major journals to inform practitioners and
influence policymakers. We network with the patient
community through state-based online support groups.
LDo communicates in print and online. We analyze and
archive information in The Lyme Times and provide
educational material on . We publish
regularly in peer-reviewed medical and healthcare policy
publications.
MyLymeData is our patient-powered research project that
allows people to use today’s computer technology to quickly
and privately pool diagnosis and treatment experiences.
When large amounts of data are combined, we can identify
patterns that help determine which treatments work best.
Add your Lyme data to MyLymeData to help find a cure for
Lyme disease.
Participate ineducationandadvocacy activities inyour state.
Learn about local resources and receive technical support
for your projects. Exchange information conveniently
from your home. To find your online statebased group,
go to:
NAMElyme. LDo also hosts a support group (LymeUSA)
and a parents’ group (LymeParents).
Visit our extensive redesigned website at ,
now available for viewing on your mobile devices. Discover
the basics of Lyme disease, co-infections, protection and
prevention. Read our blogs to stay informed on breaking
news, analysis and events. Sign up for our free email
newsletter.
Keep on top of developing news and share your own
experiences and opinions by joining the conversation
on our Facebook page: .
Follow @Lymenews to receive our tweets on your phone or
computer.
Make our voice even stronger by supporting our national
advocacy efforts. Join online at or contact
JoAnne Vidal:
PO Box 1352, Chico, CA 95927, phone 530-570-1811.
MyLymeData
Online Support Groups
Website
Facebook & Twitter
Become a Member