T his year marks a major milestone for MyLymeData—our 10th anniversary. Over the past decade, we’ve worked to transform Lyme disease research, thanks to thousands of patients who have contributed their data to this registry, as well as the generous financial support of donors. Together, we have built something extraordinary.
What is a Patient Registry—And Why Does It Matter?
A patient registry systematically collects data from individuals with the same medical condition to identify trends, improve treatments, and enhance patient care. Before MyLymeData, real-world insights into Lyme disease were limited, particularly for those who remain ill for months or years.
Unlike traditional research models, MyLymeData empowers patients by giving them a direct role in shaping research. It tackles crucial questions such as:
It tackles crucial questions such as:
- What are the most debilitating symptoms of Lyme disease?
- Which treatments provide meaningful relief?
- Does Lyme disease impact men and women differently?
These are not just theoretical concerns. They profoundly affect the lives of thousands. And increasingly, the research community is taking notice…….Join or login below to continue reading.
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