Imagine a world where Lyme disease is cured.

Imagine a world where people with Lyme disease are diagnosed and treated correctly and go back to living their lives.

YOU CAN BE PART OF MAKING THIS HAPPEN

Add your Lyme data to MyLymeData
to help find a cure for Lyme disease.

MyLymeData is a patient-powered research project. It was conceived by patients, is run by patients, and addresses the issues that patients care about. It lets Lyme disease patients learn from each other and provides data that can help drive research to improve their lives.

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What Is MyLymeData & Why Is It Important?

What it is.

MyLymeData is LymeDisease.org’s new survey tool that tracks patient progress over time. It allows patients to use today’s computer technology to quickly and privately pool diagnosis and treatment experiences. When large amounts of data are combined, we can see patterns that help us determine which treatments work best. Add your Lyme data to MyLymeData to help find a cure for Lyme disease.

It’s Patient-Powered.

MyLymeData is a patient-powered research project. It was conceived by patients, is run by patients, and addresses the issues that patients care about. It lets Lyme disease patients learn from each other and provides data that can help drive research to improve their lives.

It’s private.

MyLymeData lets you determine who you want to share information with and what it can be used for. Your data may only be used for research that is patient-centered. You can change your privacy settings at any time. This puts control over privacy right where it belongs—with you. Data is stored securely offsite using encryption.

Big data can change everything.

MyLymeData expects to gather more data about Lyme disease than any research study has done before. Consider this: The largest Lyme disease trial funded by the National Institute of Health enrolled only 64 patients in the treatment group. Our patient surveys draw over 9,000 responses! We’ll use the information provided by patients to help figure out how to prevent and treat all stages of Lyme disease. It’s that simple.

How it works.

Patients with Lyme disease tell us about their experience, symptoms, treatments, and results. Periodically, they update their information to let us know what has changed. This allows us to better understand the progression of the disease and what works—and doesn’t work—to help people get better. It lets patients learn from each other and provides data that can drive research to improve patients’ lives.
What People Are Saying About MyLymeData

Silver Feldman People are still suffering unnecessarily given the tools and research possible today. When I was at my sickest, I couldn’t do much to help. But I could have done this.” Diagnosed at the age of 13

Leader in Lyme Big Data LEARN MORE  I think it's terribly important that anyone with Lyme and/or the coinfections be a part of documenting what's happening with Lyme disease, and where it's being contracted and what's working to aleviate, if not cure it. This is why I've joined the LymeDisease.org Member Community.  I think it's terribly important that anyone with Lyme and/or the coinfections be a part of documenting what's happening with Lyme disease, and where it's being contracted and what's working to aleviate, if not cure it. This is why I've joined the LymeDisease.org Member Community. Part Of The Conversation LEARN MORE  I joined LymeDisease.org to be part of the conversation to promote research, to gain info and share info (groups, Lyme Times), to be educated in order to affect policy, and to support outreach and help for those Lyme patients in need. No part of this mix is unimportant.  I joined LymeDisease.org to be part of the conversation to promote research, to gain info and share info (groups, Lyme Times), to be educated in order to affect policy, and to support outreach and help for those Lyme patients in need. No part of this mix is unimportant. Dedicated To Education LEARN MORE  I joined to be part of an organization dedicated to expanding the knowledge base of the public and of health professionals, politicians and more, to the dangers, prevention, diagnosis, treatment of tick borne diseases.  I joined to be part of an organization dedicated to expanding the knowledge base of the public and of health professionals, politicians and more, to the dangers, prevention, diagnosis, and treatment of tick borne diseases. An Authority On Lyme LEARN MORE LymeDisease.org Member Community is THE one place to refer anyone wanting to get accurate info about Lyme Disease. It's now more like an authority that people go to other than the CDC. We need to support you in order to keep all the issues regarding this disease relevant and in the minds of all. LymeDisease.org Member Community is THE one place to refer anyone wanting to get accurate info about Lyme Disease. It's now more like an authority that people go to other than the CDC. We need to support you in order to keep all the issues regarding this disease relevant and in the minds of all. A Sense Of Community LEARN MORE
 The most important part of being a LymeDisease.org member is feeling a sense of community and realizing the necessity for collaboration in order to move forward.  The most important part of being a LymeDisease.org member is feeling a sense of community and realizing the necessity for collaboration in order to move forward. A Sense Of Community UpDates On Scientific Advances LEARN MORE LymeDisease.org does so many functions, does them well, includes all members with a sense of shared values, becomes more and more the town crier of scientific advances in tick borne disease when traditional media is either mute or propaganda driven. LymeDisease.org does so many functions, does them well, includes all members with a sense of shared values, becomes more and more the town crier of scientific advances in tick borne disease when traditional media is either mute or propaganda driven. UpDates On Scientific Advances

Silver Feldman
Silver SlideLorraine Johnson SlideRay Stricker Slide

Silver Feldman talks about MyLymeData

Silver Feldman

Diagnosed at the age of 13

People are still suffering unnecessarily given the tools and research possible today. When I was at my sickest, I couldn’t do much to help. But I could have done this.”

Silver Feldman talks about MyLymeData
People are still suffering unnecessarily given the tools and research possible today. When I was at my sickest, I couldn’t do much to help. But I could have done this.”
Silver Feldman
Diagnosed at the age of 13

Together we can find a cure for Lyme disease!

Become part of something big by providing your vital piece. When people are sick, they may feel they can’t even help themselves, let alone help anyone else. This is something any patient can do.

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