Focus – Opinions and Features

Mira Shapiro delivered the following public comment by telephone to the Tick-Borne Disease Working Group on December 2. My name is Mira Shapiro. I am a chronic Lyme disease patient, biostatistician, and data scientist who works with LymeDisease.org and their MyLymeData patient... Read More »

Amy LeBoeuf delivered the following remarks by telephone to the Tick-Borne Disease Working Group on December 2. My name is Amy LeBoeuf, and I would like to focus on one of the edicts of this committee–prevention of tick-borne diseases. Six years ago my son, Jack, was a... Read More »

Julia Wagner delivered the following public comment by telephone to the federal Tick-Borne Disease Working Group on December 2. Good morning.  I am Julia Wagner, President of PA Lyme Resource Network. Our support groups see over 5,000 patients coming through our regional support... Read More »

By Laurie Lett I have been deaf from birth. I use my hands for communication purposes – sign language and writing. My hands are my voice, and for a long time no one listened to my hands including my husband. Several doctors dismissed me easily because I am deaf, and that made my... Read More »

By Resiliently Rachel I sit in my wheelchair at the front office of my junior high. Tears sting my eyes as I explain to the school receptionist I need my mom to pick me up. She doesn’t understand. She asks why I need to go home. Why? My feet and legs are on fire. It feels like... Read More »

by Daniel A. Kinderlehrer MD Linda was 47 years old in 1990, when she became ill after visiting a park in Florida. Her “mystery illness” resulted in fatigue, swollen lymph nodes, neuropathic pains, depression, night sweats, impaired cognition, and Bell’s palsy. In 1996, she was... Read More »

Carl Tuttle gave the following comments via telephone to the Nov. 17 meeting of the federal Tick-Borne Disease Working Group. We have added links for reference. This comment is directed to Dr. David Walker, Co-Chair of the Tick-Borne Disease Working Group. During the July 8th... Read More »

Yan Zelener delivered the following public comments by telephone at the Nov. 17 meeting of the federal Tick-Borne Disease Working Group. My name is Yan Zelener and I am the Director of Science for LymeTV. We are a Portland, Maine-based non-profit focused on tick-borne disease... Read More »

Phyllis Mervine delivered the following remarks by telephone at the November 17 meeting of the Tick-Borne Disease Working Group. Good morning. I am Phyllis Mervine, Founder and President of LymeDisease.org, the oldest Lyme patient advocacy nonprofit in the country. I and other... Read More »