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VERSION:2.0
PRODID:-//LymeDisease.org - ECPv4.9.2//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:LymeDisease.org
X-ORIGINAL-URL:https://www.lymedisease.org
X-WR-CALDESC:Events for LymeDisease.org
BEGIN:VEVENT
DTSTART;TZID=America/Los_Angeles:20241011T090000
DTEND;TZID=America/Los_Angeles:20241011T100000
DTSTAMP:20260420T021641
CREATED:20241004T204548Z
LAST-MODIFIED:20241009T233402Z
UID:462512-1728637200-1728640800@www.lymedisease.org
SUMMARY:WEBINAR: Patient groups collaborating for "long-haul" conditions
DESCRIPTION:From the Long Covid Alliance: \nUniting Voices\, Amplifying Impact: National Organizations Collaborating to Support Our IACC Communities \nOct 11\, 2024 09:00 AM Pacific/ Noon Eastern \nPlease join us for the final\, culminating webinar of the Infection-Associated Chronic Conditions Understanding and Engagement (ICUE) project. We will discuss the findings and results from the project as well as ongoing efforts to collaborate across the IACC community on advancing awareness\, clinical care\, patient support and research. \nClick here to register. \nDuring this webinar\, you will hear from ICUE project leadership from the COVID-19 Longhauler Advocacy Project\, Patient-Led Research Collaborative\, and Solve M.E.\, as well as leading experts in IACC education\, clinical care\, and research. \nLymeDisease.org CEO Lorraine Johnson\, principal investigator of the MyLymeData patient registry\, will participate in a panel discussion. \nAt the conclusion of the presentations\, we will take questions and answers. \nThis webinar is an opportunity to learn and identify ways to engage and collaborate. Patients\, clinicians\, researchers\, and various other stakeholders all have vital roles to play\, both independently and collaboratively\, in advancing the understanding and management of IACCs. \nBy working together\, we can raise awareness to advance patient-centered research\, enhance clinical care\, and improve educational outreach\, ultimately leading to better health outcomes for all affected individuals. \nWe look forward to your participation in this important discussion. Please confirm your attendance by October 10th and join us in our efforts to advance the understanding and management of IACCs. Your involvement is crucial\, and we hope to see you there. \nUNITING VOICES\, AMPLIFYING IMPACT: COLLABORATING TO SUPPORT OUR IACC COMMUNITIES\nFriday\, October 11\, 2024\n9 am PT /12 pm ET \n
URL:https://www.lymedisease.org/event/long-haul-conditions-webinar/
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