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Support Groups

CALDA has set up a national network of moderated online patient support and information groups. The California group is located at http://health.groups.yahoo.com/group/californialyme.

If you are not in California, go to the Activism drop down menu to find your own state or click here.

Several local support groups also exist. Contact the moderator if you plan to attend, to make sure details have not been changed.

East Bay Lyme Education & Patient Support (L.E.A.P.S.)

WHERE: Kaiser Hospital Oakland, Mosswood Building, Room 1130A
3505 Broadway St, Oakland
WHEN: 3rd Thursday each month: 6-8 PM
CONTACT: Justin
EMAIL: justin8448 (at) gmail (dot) com
WEBSITE: http://www.meetup.com/East-Bay-L-E-A-P-S/
(Note: This group is not affiliated with Kaiser Permanente in any way.)
 

East Bay Lyme Group (San Ramon/Danville)

WHERE: No scheduled meetings at this time
CONTACT: Lucia Hui
EMAIL: lyme123@aol.com
PHONE: 925-743-9418
 

East Contra Costa County Lyme Support Group

WHERE: Sutter Delta Medical Center
3901 Lone Tree Way, Antioch, CA 94509
WHEN: The second Saturday of the month, 10:30 a.m.-12 noon
CONTACT: Karen Fernandez
EMAIL: btrflynana@yahoo.com
 

Humboldt Lyme Awareness Group (HLAG)

WHERE: Church of the Joyful Healer
1944 Central Ave, McKinleyville, CA
WHEN: Every 3rd Monday of the month. 5:30-7:30 PM
CONTACT: Sylviane Schwarz
PHONE: 707-825-7835 (weekday afternoons only, please)
 

Los Angeles/Ventura County Lyme Disease Support and Education

WHERE: Los Robles East Campus
150 Via Merida
Westlake Village, CA. 91362
WHEN: Group meets quarterly. Third Saturday of meeting month. 1-3 p.m.
CONTACT: Lisa Messner, Lisalyme.educator@yahoo.com or Annie G. LymeDiseaseCoach@aol.com
 

Marin County Lyme Disease Support Group

WHERE: No scheduled meetings at this time
CONTACT: Lee Lull
EMAIL: lymeaway@yahoo.com
PHONE: 415-927-9553
 

Mid Peninsula Lyme Disease Support Group

WHERE: El Camino Hospital/Room E
2500 Grant Road, Mt. View, CA
WHEN: 2nd Tuesday each month: 6:30-8:30 PM
CONTACT: Scott
EMAIL: ldsg_scott@hotmail.com
 

Napa Lyme Support Group

MEETINGS: Meeting dates and location are sent out in a group email message each month.
CONTACT: Bob Gligorea
EMAIL: lymebob@rocketmail.com
PHONE: 707-252-3386
 

Sacramento Lyme Support Group

WHERE: Mercy General Hospital, 40th & J Streets, Sacramento (Greenhouse room)
WHEN: meets monthly (email for date and time)
CONTACT: Dorothy Leland
EMAIL: dorothy_leland@yahoo.com
 

San Bernardino/Riverside County Support Group

WHERE: Colton Seventh Day Adventist Church in the Junior Room.
1291 North Rancho Avenue
Colton, CA 92324
WHEN: Meeting days vary, contact moderator
CONTACT: Anne Mears, RN, BSN
EMAIL: MCFighter@adelphia.net
PHONE: 909-289-4795
 

San Diego Lyme Support Group

WHERE: Site varies, contact moderator
WHEN: Time varies, contact moderator
CONTACT: Maritza
E-MAIL: maritzapadgett@gmail.com
 

San Luis Obispo Lyme Support Group (Central Coast)

Where: Contact us for meeting times and places
When: Third Sunday of the month
Contact: Sheila Jeffries
Email: free091004@yahoo.com
 

San Francisco Lyme Support Group

WHERE: St. Luke’s Hospital ACR Conf. Room
3555 Cesar Chavez St, San Francisco, CA
WHEN: 2nd Thursday of every month from 3 - 5 pm.
CONTACT: Diana
E-MAIL: SF_Lyme@yahoo.com (note underline between SF and Lyme)
PHONE: 415-786-9010
 

San Francisco S.E.A.L. (Support, Education, & Advocacy for Lyme)

WHERE: St. Luke’s Hospital ACR Conf. Room
3555 Cesar Chavez St,
San Francisco, CA
WHEN: 3rd Tuesday each month: 2-4 PM
CONTACT: Robin Krop
E-MAIL: sf_seal@sbcglobal.net
PHONE: 415-202-0174
 

Santa Clarita Lyme Disease Support Group

Where: Optimal Health, 25078 Peachland Ave Ste B Newhall CA 91321
When: 2nd Thursday of the month, 7-9pm
Contact: Linda Slocum
Email: scvproperties@ aol.com
Phone: 661-670-0349
 

Santa Cruz County Tick-Borne Disease Support Group

WHERE: Unitarian/Universalist Fellowship
6401 Freedom Blvd, Aptos, CA
WHEN: 4th Thursday each month: 7-9 PM
CONTACT: Sarah Olson
EMAIL: CaliforniaLyme@cruzio.com
PHONE: 831-662-2895
ONLINE SUPPORT: http://health.groups.yahoo.com/group/sclyme/
 

Santa Rosa Lyme Aid (Education, Support & Advocacy)

WHERE: Northern California Center for Well-being
365 B Tesconi Circle, Santa Rosa, CA
WHEN: 2nd and 4th Wednesday of each month, 10 to 11:30 AM
CONTACT: Karen Miller
EMAIL: hbgkaren@sonic.net
PHONE: 707-843-0197
 

Santa Rosa Tick Borne Disease Education, Encouragement, and Advocacy Group

WHERE: St. Rose Catholic Church, Parish Hall – Room “A”
398 Tenth Street, Santa Rosa, CA 95401
WHEN: 1st, 3rd, & 5th Wednesdays: 11:00 – 1:00 p.m.
CONTACT: Cindy Stoesser
EMAIL: cstoesser@sbcglobal.net
PHONE: 707-322-9054
 

Sebastopol Lyme Support and Advocacy Group (Tick Talk Tuesday)

WHERE: Youth Annex
425 Morris St., Sebastopol, CA
WHEN: Every Tuesday, 3 PM
CONTACT: Linda Berg
PHONE: 707-824-8417
 

Sierra Foothills Lyme Disease Support Group

WHERE: Bethlehem Lutheran Church,1279 High Street, Auburn, CA 95604
WHEN: Meets 3rd Tuesday of each month 7–8:30 pm
CONTACT: Virginia Ward
EMAIL: virward@sbcglobal.net
 

South Orange County Lyme Support Group

WHERE: El Toro Library Conference Room
24672 Raymond Way
Lake Forest, CA 92630
WHEN: 1st Saturday each month, 1 - 3 PM
CONTACT: Wendy Dickinson
EMAIL: Olympiccoach76@cox.net
PHONE: 949-855-8173
 
 

Lymenet Leaders' Group

Support group leaders, activists and advocates may apply to join the Lymenet Leaders group to share with other group leaders, activists and advocates, by going to http://health.groups.yahoo.com/group/lymenet_leaders/. Members use this site to share information with and keep in touch with other leaders, to share strategies, to critique and gain support for projects, and to discuss plans for events.

Not in California?

If you are not in California, other people in your state are probably the best source of information about support groups in your state. To find other people with Lyme disease in your state, join your online state group. For information about the online state groups, click here. [LINK TO http://www.LymeDisease.org/activism/not_calif.html] If you don't get help from your state group, please check the support groups listing at LymeNet. Click here to go to LymeNet.